No, I am still not over Cat Planet.
Last week was rough. I spent a couple of days in bed, including a workday. I worked from bed, which was distracting. Sometimes I spend all day feeling like my heart is going to burst out of my chest. This lasts for about a week and then I get really tired and sore at the end. My body is exercising by itself sometimes.
In the middle of this I took the girls to their doctor for a check up and some shots. It did not go well. I feel like I should chronicle it, so I can remember why I was mad later in case I think about going back there.
I admit I was a little keyed up since I have been spending a lot of time in many doctor’s offices this year, being told various things that sound like guesses or just wrong a lot of the time. I kind of hate everyone, worse than usual, which is making it challenging to go into a medical place and try to wring something out of it. I fall back on my auto-didactic training in manners I fetched up after fleeing Being Raised by Wolves. The lizard part of my brain is going, “Punch them, punch them all, and then steal exam gloves and run out.”
Our serious nurse in Scooby Doo scrubs that I always liked was not in evidence. It was strange to have someone else come out and fetch us. They lumped the girls up in one room and I suggested that they have separate appointments as I requested on the phone, since they are not four. I said “for privacy” and was not snotty about it as I was in my previous statement. The substitute nurse seemed taken aback by this, as much as she could be by anything, I suppose, since she hardly seemed to have a pulse. Her tone was annoyed with every request I made and response I gave. I couldn’t quite figure it out.
She left the room and we all three kind of sighed.
“I wish the regular nurse was here,” Franny said. “She’s good at shots.” Franny hates needles.
Strudel’s exam was fine. The doctor told her to go back on wheat for two weeks to be tested for Celiac properly, and Strudel nodded solemnly. The doctor left the room to go to Franny’s exam room, and we were told that they were out of Strudel’s vaccination, and there was no point in testing her blood, so she got off scot-free for now. Fine, good. I had her go back to the waiting room and I joined Franny.
“So,” I said. “Franny and I have made a list of what’s going on with her so we don’t forget anything.” I handed it to the doctor. “I have hyper- and hypothyroid in my family, and Grave’s disease. This looks like Celiac right now, but I am worried that her thyroid could be involved as well with her energy levels and whatnot.”
She scanned the list of ~30 symptoms and zeroed in on infrequent periods. “Let’s start with female-specific symptoms. You think she has PCOS?” she asked.
“Well. I don’t know. I’m not an expert and I can’t see into her body. I am just giving you everything that’s going on symptoms-wise. Maybe it’s PCOS.”
“It doesn’t really matter if she has PCOS or not, because that’s an issue that affects fertility and she won’t have to deal with that for a long time.” She turned to Franny: “How about birth control? Do you want to be on birth control? It can regulate your periods.”
“I’m not sure,” Franny said. “I’d need to know more about it.”
“Sooo do you think birth control will fix things like her brittle nails and her hair loss, and the fact that she can sleep twelve hours and still be tired?”
“What do you suggest then?” the doctor snapped.
“I was hoping you would test her thyroid, and do the blood test for Celiac disease.”
“Fine, I guess I could rule things out,” she began writing.
“Yeaaah so are you going to just test TSH? Or reverse T3 and T4 and free T3 and T4 and…”
“THAT WON’T TELL YOU ANYTHING.”
“…And I thought maybe testing for Hashimoto’s since there seems to be some relation between Celiac and Hashimoto’s…”
“It doesn’t matter if she has Hashimoto’s because we can’t do anything about it!”
“Like PCOS,” I said. “You don’t believe there’s any value in knowing what’s going on with her?”
“Like I said, we can rule these things out.” She changed tack then, back to birth control, which I am not opposed to, really. I just don’t believe that’s the panacea here. “Well, are you missing school due to your period? Is it interfering with your life and school?”
“It’s not really regular,” she said.
“That’s normal for your age,” the doctor said.
“It’s not really interfering with her life because she’s only having about two a year,” I interjected.
“Oh,” the doctor said. “I didn’t realize.” It was spelled out there on the sheet, and was part of the only section she appeared to have read, but I get it. It was a long sheet.
“I will get the nurse in here to draw your blood, and to give your two vaccinations,” the doctor said, and left.
“So that went well,” I said. Franny started laughing.
Eventually the nurse came back and gave her quite a jab, and walked out again.
“Thanks,” Franny said, to the nurse’s silent retreating back. The door slammed. “Ouch, FUCK,” she said. “The other nurse wouldn’t have done it like that.”
“I know,” I said. “You know, you don’t have to thank people who are hurting you. It’s okay.”
“Alright,” she said. “You okay, Mom?”
“That whole interaction with your doctor made me feel a little crazy and upset. I’m fine. We’re going to keep trying to figure out what’s going on with you.”
The nurse brought back some testing vials and laid everything out for a blood draw. She attempted to find Franny’s vein three or four times and then gave up when Franny started crying. Wretched.
“I’ll get the other nurse,” she sighed. “Even though she doesn’t like to take blood from young people.”
The other nurse, who has been around for years and is a very nice lady, managed to get the blood out just fine, and into the vials that the first nurse had supplied.
“I know you are not our nurse today,” I said, “but Franny has only gotten one vaccination, and her doctor said she was supposed to have two. Would you please ask about that so we don’t leave without it?” She did, and returned, and gave the second vaccination.
“I know you’re a little old, but do you want a lollipop?” she asked Franny.
“YES.” Happy tears followed sad ones. BOOM, bedside manner’d.
We left and everyone was in a pretty bad mood. Except maybe for Strudel, who had escaped a shot and received a lollipop as well, which was the most serious hardcore sugar she’s had all month. I am amazed at this kid who is taking a break from her 7-11 candy binges.
“I don’t want to go back on wheat, Mom,” Strudel said.
“Okay,” I said.
Of course Franny went off wheat after this, and called me from her dad’s house this weekend, reporting that she was feeling much better…until her stepmother pulled some fried herbs off some pasta and told her to eat them and that they were wheat-free. Franny got to show off her giant bloated stomach to them as a result and slept for over eleven hours. It will be a learning process for everyone. I was relieved her dad took it in stride, since this isn’t the first time she’s gone off wheat. He bought her some grits, rice crackers, nuts.
I know I should be grateful for these concessions, and I am, but I read my post about talking to him about trying her off wheat in 2008 (which I linked to in my last post) where he blamed me for her stress and stomachaches. This is why I write things down, even though they make me mad later. It’s important to remember some things.
She says they live on wheat over there–pancakes for breakfast, Cup Noodle for lunch, and spaghetti for dinner. It’s no wonder she reports having a good weekend over there with her dad, but comes home in a terrible mood and is tired and irritable. She usually smooths out by Wednesday or so, and then it starts over again when she visits and comes back.
The doctor’s office called me on Friday, and I did not get back to them in time, so I had to wait until today. I expected a TSH result that would probably tell me nothing, and either a yes or a no on the Celiac. What I got dismayed me. The nurse pulled the wrong vials and drew her blood into them, and so they couldn’t be processed.
“So you’ll have to take her somewhere for a redraw. Where do you want the order sent?”
“Wait, you can’t use the blood that was drawn? So she has to have it completely redone?”
I chose Children’s Hospital. It is going to suck to break this news to Franny tonight, but at least I will take her to a place that has been nice to us in the past and draws blood from younguns all day long. Fuck.
Pictures, I have so many pictures. My fucking photo editing tool is not letting me resize or crop photos. Also I am supposed to be downtown right now doing research in Gourmet Magazine but I actually wiped myself out from being mad. I am exhausted now. I will drag to the grocery store and try again later this week when I have time.
I could sleep forever but I am afraid of missing my life. As it is right now it feels like it’s down to a little pinpoint. And I do feel a little crazy, because the medical stuff is just expanding. It’s not just me, but I have to take care of my girls’ issues that they inherited partly from me. Some days it is hard to get up, get dressed, and now I am looking at schlepping them to doctors, poor things. Better now than later.
I think about SeaFed and his childhood nosebleeds and daily stomachaches, and the fact that his mother went down with dementia after years of brain fog, and I wonder. As I’ve mentioned P. is doing much better as well and has a mother who has not eaten wheat in years due to her many, many health issues.
As ever I am trying to break the cycle.
I actually kind of miss a year or so ago when my heart would race for a week at a time and I’d be like, eh, fuck it, I am just going to get a lot done since I only need to sleep five hours right now. I’m sorry, body.