I just found a summary of my brain

On something called Tweetails. This app sifted out my most used words. I have not been tweeting much this year in my desire to be less chained to my phone, but I have been tweeting for quite a while now. Maybe I will get back to it when I recover, since I don’t want to be sick on twitter. So annoying. Almost as annoying as SICK BLOGGING.

I will update on the mess that is my immune system after I go to the doctor this afternoon.

In conclusion,

OMG fucking cheese butt

Passive sentence construction with overuse of certain words, see me after class

I think being ill makes me think of being young and vulnerable and poorly cared for, hence my maudlin trip down memory lane a couple of days ago. Plus the similar physical feelings. I’m in decent spirits though.

This is where I go to remember. If you talk to me in real life, I hope I seem like I’m planted in 2014 most of the time. I don’t know who I’m writing this to, ultimately. I’m glad I’ve been keeping am online journal since 2001. My secret is that when I write with a pen it’s a slog and demoralizing. Typing is my medium and it always has been. I did okay when I was a child, and in college as a note taker, but now when I put letters to paper the letters jump into the correct words, but often out of order. I am a decent speller but I cannot make my brain tell my hand to do it in the correct order. I have to concentrate to write a check or a grocery list. Typing flows like water.

I’m grateful that I’m read and heard at all. Part of me is writing to my future self, because sometimes I go back and cringe and make sense of things, sort of. Maybe I am hoping my children will read this someday and try to make sense of it some point. I have had to reflect back into the past on my own and try to impose some sense of compassion onto my family, which was obviously a mess. Maybe I am trying to leave a map for my girls so they can see that the stew is attempting to be equal parts “mom is flawed” with “but she was trying.”

Today I feel–the same. It’s distressing to have too much pain in my legs to stand in one place. It’s hard to go to the fridge and get a glass of juice. The first round of results came back and I have a marker in my blood that is saying that I have inflammation, which. Yeah. I’m on orders at this point to rest for 5-7 days and if there’s no change then it’s advanced testing. The hope from my doctor is that I have Worst Flu Ever, or “Flu Part Two” as I’ve been thinking of it, since your typical flu symptoms cleared up in about a week. He’s hoping this will subside it and it will kind of be Mystery Viral Myositis What I Kicked Eventually. I am running out of Prednisone in two days which makes me nervous because it is uninflaming (it’s a word now) my body and I can sleep.

This has been so consistent and ongoing since the onset that I don’t really have a gut feeling which way it’s going to go at this point. Being off Prednisone on Saturday will be the moment of truth I suppose. Will it be less pain, or the same as Tuesday, when I went to the doctor. I think I’m being tested for Lyme disease, but if not, I will make sure I get tested. I keep thinking about these two bug bites I got on my ankle on the first night in Hawaii that were irritated for days, and stung horribly in the ocean. Everything could be a coincidence, or it could actually mean something.

It’s only a flesh wound

THE PROBLEM with effective medication is that when it is working I somehow manage to tell myself I was kind of imagining the whole thing in the first place. I felt pretty good last night, except for my poor pounding head, but I stayed in bed anyway, sensibly. Still, part of me was going, “Wow, what a drama queen. I knew I would get better. Too bad I wasted everyone’s time. I bet I’ll be back to work tomorrow.” Likewise if I saw my severed head across the room somewhere I’d be like “Eh I must have an ingrown, bring me a tweezer.” It’s stupid.

I did the same thing in Hawaii recently. I mentioned we went on a short hike in a pretty national park after the jellyfish stings and before we all started having the 2014 Asshole Ranch Sing-a-long. While I lay in bed and in between trips to the hotel room’s loo I noticed my calves were stiffening up.

“You’re limping,” P. said.

“Am I?” I asked. LYING. Could anyone be more annoying? JUST ADMIT YOU ARE LIMPING, idiot. I probably even said something like, “I can still fight you.”

My calves knotted up and he insisted on rubbing them, which was really nice. After three really gentle tries (the skin was painful to touch) he got them to loosen a little so the muscles resembled normal calf muscles again, and not lumpy steel bars.

“I have a problem with those stupid shortie stairs,” I said. “I bet this is why I’m sore.” You know those weenie stairs that are supposed to make a climb easier but they are just annoying and make you feel like you’re skittering along like Pekingese or a centipede or something. WHO ARE THOSE FOR? The park was riddled with them up to the lookout area.

So that was the beginning, I guess, which I kind of ignored.

“I feel like I’ve been poisoned,” I told the doctor yesterday. I actually kind of know what that’s like. I told him the only other time I’ve had a headache like this when when I was about Strudel’s age and I had blood sepsis. I will never forget that headache.

As I’ve mentioned in the past, I had keratosis pilaris as a kid, which I was very self-conscious about. My friends always noticed and asked about them, and some people thought it was contagious. I had no idea what it was, that it was no big deal, really, and that a large percentage of the population has it. I asked my mother about it when I was little but it was considered one of the great mysteries of our time.

“I have no idea,” she would say for the umpteenth time, exhaling her cigarette at me impatiently. “All I know is that it appeared two hours after you were born and never went away.” Translation: I had a stupid baby and then it got covered in an ugly rash. Once, for reasons I cannot fathom, I was fretting about “leg bumps” and she told me that she got them too. MAN, what a relief! I wasn’t just a mystery mutant. Years later in high school I told her how nice that was to hear.

“Oh, that,” she said. “Well, I don’t remember that, but I think I was just lying to make you feel better.”

Strudel has inherited my KP but she’s fairly philosophical about it since we know what it is and how to manage it somewhat. She went through a phase of ripping her arms up like I did, and was always covered in a few scabs. I wore long tee shirts and no tank tops for years to hide the damage. She is less self-conscious. I have gently pointed out the results of her excavations and the scars and she tries to leave them alone. I keep a loofah for her for when she can be cajoled into showering, and we talk about the importance of moisturizing.

Needless to say, I was not allowed to pick at myself. I have an early memory of sobbing and trying to read a book with mittens on, which I was forced to wear sometimes. On a good day, my parents were rather Victorian in their parenting techniques.

So when one of my little bumps went awry on my arm, I kept it a secret. I think I was almost ten. I guess I got some dirt in it from my disgusting kid fingernails, because it went toxic. My grandmother was visiting and I remember we went to a little former mining town that had become one of those cute tourist traps. We had lunch and toured old homes which had been turned into museums. There is a picture of me in the corner of one of these preserved Victorian homes, pale and strained-looking.

“Why won’t you smile?” my mother asked, wielding the camera at me. Because I feel like laying down and dying but I think it’s my fault and I don’t want to be punished. I had gotten over a lot of things on my own, in secret, even lying about how ill I was. I could lick this as well.

But my body couldn’t fight it off. I woke up in the middle of the night, my head pounding. I knew I would be in trouble if I woke my parents up over a trifle like this. I came to my grandmother, crying, who sensibly woke my parents up when she discovered I was on fire and crying from the pain I was in.

“Do you have any idea why you’re so sick?” the doctor at the hospital asked. I shrugged. I had my suspicions. I reluctantly pulled back my sleeve to reveal the throbbing source of pain on my arm. I uncovered a festering scab, only about the size of a pencil eraser, the skin around it red and tender, with a three-inch red streak that was snaking its way up to find my heart. His eyes went wide.

“What happened there?” he asked, alarmed.

“I think it was a bug bite,” I lied.

“WHY didn’t you tell us?” my mother hissed at me after the doctor left.

“I didn’t think it was a big deal,” I said.

My poor grandmother had to spend the rest of her visit minding a sick kid, but she was probably happy in a way to have a captive audience to watch her soaps with. I remember her being on the phone with my Aunt Kesa from back home while I convalesced on the couch.

“It’s the weirdest thing,” she said, sotto voce. “I have never seen a kid cry silently before.”

So this is that headache. And the Predisone is only lasting about 18 hours. I hear back about my first round of bloodwork today so I hope this will be short-lived. If not, I’ll just walk it off. Ha!

“I have to go someone is watching me in my space ship”

YOU GUYS I AM SO HIGH RIGHT NOW.

I’m wacked out on Prednisone at the moment and trying to watch House of Cards. But it’s like BUTTERCUP how did you end up with Humperdick after all? Where’s the giant? Whatever. Do I like this. I do not like this party hat. How about some slash fiction between the Giant from Twin Peaks and the Giant from the Princess Bride. It will be called A Tall of Two Titties, because moobs.

The last time I took this drug I had poison ivy for a month and it was spreading and I was legit dying of poison ivy. I slept with socks on my hands. I watched my roommate, the one who could put cigarettes out on his tongue and turned power tools into sex toys, he had some old fangled 90s gaming system. Nintendo 64? It had a bad Fifa soccer game or whatever. It was hilarious and everything smelled like Dr. Pepper and then my poison ivy cleared up.

I should tell you what I have. I have FLU BEAVERS in my MUSCLES. YUM YUM CHEW CHEW. I can barely stand. Did you know that flu can go into your muscles? But they are also testing for toxins and parasites too. My eyeballs feel like boiled radishes. I am waiting to hear about my blood tests. I have been sick since February 19. I am sad. Also I think I smell bad. If my pee turns brown I am supposed to call an ambulance. I could pee right here but it would only be ok for a minute.

If I die P. says he will update. NAPTIME.